← Return to Internal vibration with "nerve firing"

Discussion

Internal vibration with "nerve firing"

Brain & Nervous System | Last Active: 2 days ago | Replies (82)

Comment receiving replies
@teach3foruyahoocom

I am older but was always healthy generally until this year, at 62. Started showing symptoms about 2 yrs. with possible UTI's, yet never any bacteria in urine. It felt like retention? Lost feeling, numbness/weakness in first my feet, up my legs, and after falling and breaking my left ankle and going to E.R. in Feb. 2023. It took until August, after many blood tests, a spinal tap, and several MRI's before I was finally diagnosed with MOGAD. Look it up, ask your neurologist to do a test. I am so sorry you are going through this. MOGAD is rare, so many neurologists and doctors won't or don't recognize it. Hugs and Best Wishes to you!

Jump to this post


Replies to "I am older but was always healthy generally until this year, at 62. Started showing symptoms..."

@teach3foruyahoocom
I’m so sorry to hear about your challenges with MOGAD. I looked it up. Never great to have rare disorders either. I have HNPP which is also rare. To read about it they only talk about the 85% of people with mild nuisance symptoms. Frustrating. For the other 15% it can be pretty challenging. My most limiting issue is chewing, swallowing, aspiration issues that really limit what I can eat. It can mimic myasthenia gravis for one thing plus a host of other neuropathy issues. It’s demyelinating so nerves are easily damaged. It’s genetic. My son has already had to have nerve transposition surgeries on both arms because of severe arm pain and loss of use in the last two fingers on both hands. We both have a lot of ongoing issues with it, but research dollars will be minimal since it’s rare and not life threatening unless I get aspiration pneumonia. My son and I have both battled issues with it since our teens. It’s slowly progressive without enough data to make predictions. There are definitely worse neuro diseases to have though so I always feel lucky in the grand scheme of things.

Prayers for you that you will see better days with all this. Neurological stuff seems to wax and wane a lot.