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Is everyone with pNETs on creon?

Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)
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@familything

So did you have surgery? My pNET is about that size (8x6) but I have been without symptoms, or very slight. They want to cut it out after chemo. Is that your path?

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Replies to "So did you have surgery? My pNET is about that size (8x6) but I have been..."
Turkey | @tomrennie | Oct 22, 2023

Surgery is not in the plan. The plan is to stay on capecitabine as long as it is working. I am trying to avoid Surgery if possible.

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Teresa, Volunteer Mentor | @hopeful33250 | Oct 22, 2023

Hello @familything and welcome to the NETs support group on Mayo Connect. I'm so glad that you joined here. This is a great forum to learn about the experiences of others as well as ask questions and get support for yourself.

It sounds as if this is a recent diagnosis. Many of us, like you, had no symptoms before our diagnosis. What test or scan revealed your PNet? Have you begun chemo yet?

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