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Aortic Aneurysms – Introduce yourself & meet others

Aortic Aneurysms | Last Active: Jun 11 7:05am | Replies (433)

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@csd

That’s a shame to hear, but make sure they’re still being vigilant about checking it

I had a 4cm AAA they found in August in an MRI for my back. Said not to worry..Had pain last Sunday morning and went to ER, Ran a CT scan and they found it had enlarged to 4.75 and was tearing apart….so my wife and five daughters had to choose between EVARS or full open.
They chose full open…best decision of my life. They found an other tears once inside…the docs here at UVA saved my life….yelp still very sore and it’s a hard road back…but at least I have the opportunity.

My point is, keep checking it, and don’t wait to fix it!
God bless you and good luck

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Replies to "That’s a shame to hear, but make sure they’re still being vigilant about checking it I..."

My relationship with my primary care physician has been reduced to a face to face appointment every 3 months. I haven’t had a proper full examination visit in years. He doesn’t do a complete physical.
I went to an ER a while back for Coumadin poisoning. My blood thinner had increased my normally 2.0 - 3.5 all the way off the chart. They said it was at 12 instead.
Could have bled to death. A CT scan was done and while laying on an exam bed he comes up to me and says “ we are going to transfer you to a trauma hospital for emergency surgery”

I asked him how come and not only was I bleeding internally from the high Coumadin level. I also had an aortic abdominal aneurysm and it was torn. The trauma hospital said that they were thinking of taking care of my aneurysm but “ it isn’t bleeding right now but you will need to come back to the hospital but for now since it isn’t bleeding the “team” felt that "you could be discharged because it wasn’t bleeding at the moment so you don’t need emergency surgery right now"
Upon being discharged he said “ see your cardiovascular surgeon ( I happen to have one) ASAP”

I called my surgeon when I got home and he told me that he wouldn’t see me unless the trauma hospital said it was an emergency!!
I told him about the asap instructions and he said “oh all hospitals say that”

I finally convinced him to see me in 2 days. I met his rude and disrespectful secretary and she said “where’s your mask?” before anything else. (Covid protocol)
I had forgotten my Mask at home because I was thinking about my potential surgery.

His aid did a sonogram of the abdominal area and said “all set “
I was led to the exam room and waited. Finally he swings the door open and says “I didn’t see anything”
I said that for 3 years you have been telling me that my aneurysm was ok and “now you’re saying you didn’t see anything?"
2 different hospitals saw it and now you’re saying you didn’t see it?”
He came in rolling his eyes up and made light of it and left. On the way out I said that “could it burst?” And he said “it could but we have ways to take care of that “
I’m thinking supposed it burst while walking in a park? It needs immediate attention because it can quickly become fatal!! Especially when my blood is on a thinner.
He talked over me, he seemed annoyed, he rolled his eyes back and said “ see you next year!” And left the room. No time to discuss my concerns. He was with me for 5 minutes. I spent more time getting my vitals taken.
I told my PCP later and he told me to see my cardiovascular surgeon. ( the same doctor who blew me off because I screwed up his appointment schedule). I called my cardiologist instead because he works in a "cardiovascular of New England” I left 3 voicemails. Never returned my calls. My PCP experience was awful! 10 minute visit. Spent more time with the nurse taking my vitals. He was just like my cardiovascular surgeon. Neither one helped me. The surgeon was annoyed and my pcp saw me face to face and basically did a quick talking to me and “ see you in 3 months “ and left. Now what?

I went last week and doc said sac is getting bigger.
Need to have a CT. He gave me no idea why. Just wait and see.