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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: 55 minutes ago | Replies (226)

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@becsbuddy

@mctd1972 Wow, you put me to shame with all you do! Goodness, gracious! Welcome to Mayo Clinic Connect. Osteoarthritis seems to be your biggest problem especially because it affects your hands. Here’s a discussion group where you can connect with other members
https://connect.mayoclinic.org/discussion/osteoarthritis-3/
And see what they do for their osteoarthritis. There are many discussions about osteoarthritis so I hope you can find some answers.
May I ask, how did you find Mayo Connect?

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Replies to "@mctd1972 Wow, you put me to shame with all you do! Goodness, gracious! Welcome to Mayo..."

Thanks-- it sounds like a lot, but many if not most days, I feel like I'm not getting as much done as most people my age who are still working, and the things I get done take forEVer!

The brain fog is worse when I'm under pressure or anxious about something-- I'll put something down and not remember where I put it, which eats more time, and makes me more anxious, etc. The psychological impact of the disorder is formidable, particularly the isolation-- and I've seen some posts about that here, I'm going to go back and troll through the earlier posts-- though I think it's important to remember that the primary cause is physical, and I have only limited, partial control over it.

Thanks for the links to the osteoarthritis groups! That IS what's worrying me most, you are correct-- at least at the moment. I have also started having episodes of low fever with body pain, usually after exercise, which is maddening. Like, why could I ride 12 miles yesterday and felt great, and today I rode four miles and took a 5-minute swim in 80 degree water, and woke up four hours later with severe chills, trembling so bad I could barely hold a glass of water to take Tylenol. These are more like my symptoms as an adolescent, but so far, this just happens a few times a year. It did keep me out of work for a day a few weeks ago.

I found Mayo Connect through a Google search for new articles on MCTD, something I do about once a month. First time this place has ever turned up. I used to be a member of the Daily Strength group for MCTD, but that forum got sold and redesigned so no one could use it, and everyone left.