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Is everyone with pNETs on creon?

Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)

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@kristys72

Thank you for the reply.
Did you have similar symptoms before diagnosis?
That’s great news that you have shrinkage Hope all is good with you

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Replies to "Thank you for the reply. Did you have similar symptoms before diagnosis? That’s great news that..."

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over 3 years. I lost over 100lbs. Due to covid, it was hard to get tested and diagnosed. My revolving door of primary care doctors didn't help. When I finally got diagnosed, I was in bad shape. Not only did I have a pnet, I also had innumerable lesions on my liver. The lesions are almost gone and my pnet has shrunk. When it was small enough to allow my pancreas to function after four months of treatment, everything started getting slowly better.