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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)
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@colleenes

Hi I was diagnosed with acute MP 4 months ago it’s been a living nightmare, been on steroids for the past 2 months but really they have done nothing, they are operating next month to do biopsy on my Mesentric and lymph nodes around it , they want to start me on a drug called Puri-Nethol I’m a bit worried about it but the specialist said it will help me, it’s a horrible disease the only thing we can do is just keep trying and investigating new approaches to it.❤️💚

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Replies to "Hi I was diagnosed with acute MP 4 months ago it’s been a living nightmare, been..."
adam25 | @adam25 | Oct 21, 2023

Did yours just suddenly start causing you issues? Mine suddenly just showed up in Labor Day weekend and pain just won’t go away. Constantly getting stomach pains and fevers. I’m hoping Mayo accepts me as a patient as it’s been on my CT scans twice and I’ve been to specialist and ER around my house and nobody does anything. I was supposed to hear from Mayo this week but didn’t. It really is a horrible experience so far hopefully you can find some relief. I’ve completely changed my diet. I don’t do meat anymore at all.

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