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Is everyone with pNETs on creon?

Neuroendocrine Tumors (NETs) | Last Active: Apr 26 11:19am | Replies (20)
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@tomrennie

I have a pNET. I have never taken creon. I was on CAPTEM for 12 months and now just CAP for 3 months. My tumor started off at 8x6cm. It was 4x2cm on my last scan 2 months ago.

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Replies to "I have a pNET. I have never taken creon. I was on CAPTEM for 12 months..."
kristys72 | @kristys72 | Oct 20, 2023

Thank you for the reply.
Did you have similar symptoms before diagnosis?
That’s great news that you have shrinkage Hope all is good with you

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familything | @familything | Oct 22, 2023

So did you have surgery? My pNET is about that size (8x6) but I have been without symptoms, or very slight. They want to cut it out after chemo. Is that your path?

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