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Psychological effects of living with neuropathy
Neuropathy | Last Active: Dec 1, 2023 | Replies (106)Comment receiving replies
Pain, pain, pain. My steroids gotten taken away by a new rheumatologist, and none of my four doctors will prescribe them. Pain and it’s subsequent side effects are wearing me down. So I’m whining this month. But only to myself and this forum!
I read this again recently, and don’t even know who to credit it to, so feel free to borrow!
“I do things at pain levels that others wouldn’t even consider moving at, because if I don’t, I wouldn’t have a life. This doesn’t mean I’m having a ‘good day’. It only means I was able to be stronger than the pain for part of the day.”
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Wow. Couldn’t agree with you more!!!! If I don’t get up and deal with the pain I wouldn’t have a day at all. Pain is 24/7 and always changing. I may be out and about, but it doesn’t mean I’m feeling well. I’m just dealing with the pain. It’s ever present!!!! I do what I can do, when I can do it. Never heard of SFN until I was diagnosed. But knowing what you have doesn’t make the pain disappear. You just know why you’re in pain. It took 3 years for a proper diagnosis. Three misdiagnoses and 3 useless surgeries only made matters worse. The medical community seems clueless on how treat this disease. I’m considered idiopathic, so there are no targets for treatment. It’s all about pills!!! And nothing seems to work very well. So I deal with the pain and try to keep a smile on my face.
But it’s not easy. And it will probably just get worse in time. I haven’t given up just yet. Seeing a new neurologist in January. Appointment made in February!! Eleven months to just get a consult. But I’m told she’s the best. Time will tell.