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@paulbklyn

Hi Everyone I'm Paul

Have posthepetic neurolgia for almost 3 yrs. Three months ago they implanted a spinal cord stimulator
in me which did take some pain away. I'm not being off fentanyl 75 mg down to 12 mg. Last
few weeks been getting night pain that drives me up a wall, usually goes away around 4 am.

Call my pain dr, he told me call the reps from Nevro well I need help now, he said no more meds for you.

I tried to change the program of the stimulator to no prevail ( I get More pain). Seems to me I'm a cash cow
for my pain dr, well I got another appt. with a new Dr this Saturday.

wish I didint have to take any meds but I need sleep, my family gave me something didnt work so Ill suffer till
Saturday.

This is my story I only hope they find a real cure for this and we all stop suffering.

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Replies to "Hi Everyone I'm Paul Have posthepetic neurolgia for almost 3 yrs. Three months ago they implanted..."

Hello Paul, welcome to Connect. Thank you for taking the time to tell us a bit about yourself. I am sorry to hear you experiencing some frustrating issues regarding your posthereptic neuralgia.

You may find this discussion specifically about posthereptic neuralgia of interest, http://mayocl.in/2iiJEo7. In this discussion you can Connect with other members who can relate to what you are experiencing and provide support for one another.

They tried to push the spinal stimulator on me as well. I didn't like what I read in the disclaimer. My friend had one implanted and it took away about 50% of his back pain. He is "so so" on using it. I think Medtronic makes a good living on it as well as the doctor.