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Continue PSA surveillance or have a Prostate MRI?

Prostate Cancer | Last Active: Oct 28, 2023 | Replies (42)

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@gkm

I was diagnosed in 2016 as a result of a biopsy with a Gleason of 3+3. I had 3 more biopsies over the next couple of years. My urologist had resisted ordering a MRI as he wasn't comfortable as to their effectiveness. However, i 2018 he felt that the quality of the MRI's had improved. The MRI showed suspicious cancer in the anterior zone of the prostate which is not the normal location of the cancer and my PIRAD score was 5. He ordered another biopsy with 16 snips, including the anterior zone and it produced a Gleason score of 3+4 which led to a RP in April 2018. Post surgery my Gleason was a 4+3 and while my PSA after surgery was undetectable < .008, it slowly started to rise and after a PSMA-PET scan in January 2022 I had salvage radiation with two shots of Zoladex. The good news is that my PSA post SRT is still undetectable. While I continue to suffer from incontinence and my bowel movements post SRT have deteriorated; I can live with that. My testosterone level is still extremely low but I am okay with living with one diaper and a pad per day. In the meantime, at age 81, I still participate in my twice weekly exercise class and I am still golfing, playing squash and I am getting ready for another ski season on Whistler Blackcomb.

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Thank you for sharing your story. It encourages me to stay positive for hopeful outcomes. Best wishes to you in your road ahead and on the Whistler slopes! I live in Atlanta now but enjoyed the times earlier in my life when skiing out West in Colorado and California. I have Peripheral Neuropathy since 2008, so cold and snow don't pair well with my PN. Perhaps I'll explore some high-tech products that could enable me keep my numb toes warm enough to take on a few downhill runs again. I'll dream of gliding down that power in the Rockies again!