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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 19 hours ago | Replies (7049)
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@janetdh

I experienced a trimalleolar fracture of my right ankle in 2011 and then had problems with the hardware on the fibula--it shredded my peroneal tendons and that took awhile to be diagnosed. As a result, I also have complex regional pain syndrome. Symptoms started in 2012 and CRPS wasn't identified until 2015. It started in my right ankle and has now spread up my right leg, to my left knee, to my left hand and arm and in my face. I have been treated in a variety of ways, but currently it's primarily medications including ketamine infusion treatments. Have been continuing my PT in order to try to maintain as much function as possible to enhance quality of life. Sometimes it is overwhelming, and frankly scary as it is not always clear what it is doing to my body and brain. Wasn't sure if this was the forum or the brain/nerve one.

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Replies to "I experienced a trimalleolar fracture of my right ankle in 2011 and then had problems with..."
mikee | @mikee | Dec 7, 2016

Chronic pain and autoimmune diseases go hand in hand. Stronger medication may be indicated.

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Justin McClanahan, Moderator | @JustinMcClanahan | Dec 7, 2016

Hello @janetdh, and welcome to Connect. CRPS, also known as RSD, sounds like a scary thing to be dealing with. It is good that you are continuing your PT and working with your physician to try and manage your symptoms. CRPS would qualify for either forum, whether it be pain or brain/nerve, so you did not post incorrectly.

You may want to check out some earlier discussions that took place on Connect regarding RSD/CRPS. In these discussions you will meet some other members who have experienced symptoms similar to yourself and may find some other ways to handle the syndrome.

- After knee replacement, I developed RSD http://mayocl.in/2cX10nN
- RSD/CRPS http://mayocl.in/2dk3ucb

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janetdh | @janetdh | Dec 8, 2016

Thanks, will check. Have been on ketamine infusion therapy for almost a year; my CRPS continues to spread. My neurologist is making a referral for Calmare (Scrambler) therapy, but they informed me have to be off my gabapentin and ketamine for 6 months prior to changing treatment. Am nervous about changing.

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