Very well said!!! Myself? I was diagnosed with idiopathic Small Fiber Neuropathy 3 years ago. But early symptoms led me to 3 different podiatrists. My feet hurt terribly!!!! So you go to a podiatrist. Right? Misdiagnosed 3 times which led to 3 different USELESS surgeries!!!! On to the neurologists. It took the third one to recommend a skin biopsy to rule out SFN. Unfortunately, it came back positive. He seemed surprised!! Then prescribed horrible medications that help only minimally. My primary care physician always asks about my depression. My response is always that it depends on my pain level. Which is almost always high.
24/7. I’ve tried some antidepressants along with either gabapentin or Lyrica. They are horrible!!!! They mess with your head and do little for pain.
So are you whining? You’re entitled to whine. No one can really understand what we go through on a daily basis. It’s truly debilitating, and hard to accept. I was very active and athletic prior to my first symptoms. Skiing, hiking, tennis, you name it, I was good at it!!! That was all taken away literally overnight. I was forced into early retirement and live a very sedentary life which I wasn’t built for. So am I depressed? You’re damn right I am!!!! It’s been almost 7 years, and to be honest, I’m pissed!!!! My wife is the only one who REALLY knows the pain I feel everyday. Friends don’t understand why I don’t want to participate in certain activities. They see I can walk, but they don’t feel the pain I feel. Even simple activities are overwhelming.
So whine away!!!!
I know what you’re going through.