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Total Pancreatectomy: What can I expect?
Digestive Health | Last Active: Mar 17 9:16am | Replies (20)Comment receiving replies
Hi
My sister also had a Totalpancreatectomy done in Dec 2021. she had her spleen, gallbladder, in part intestine taken out, It has been almost 2 years. She is still suffering from a lot of gas/bloat. She can hardly eat these days. She is on 1500 cal of TPN daily. Life is so miserable for her as she can’t eat but wants to eat. She cannot hold on her food and will throw up five minutes after she eats.🥹
Do you have similar side effects from the surgery? If so, how do you manage your symptoms? Your advice is greatly appreciate it.！
Replies to "Hi My sister also had a Totalpancreatectomy done in Dec 2021. she had her spleen, gallbladder,..."
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I'm so sorry to hear abou your sister's situation. My husband was also put on TPN eventually since we could no longer get food into his system the normal way - intestinal blockage about 3 years after surgery. He ended up with a G-tube so he could still "enjoy" eating but everything was then emptied back out via the tube instead of vomiting. Neither method is a quality way of living but we did what we could to try and carry on, and he got to eat whatever he wanted, which was one simple pleasure, at least. He is no longer with me after a 4 year battle with PC and treatment including chemo, radiation, whipple, and more, but there are miracles waiting out there so never give up hope. Prayers to your family 🙂