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Liver Transplant to Treat NETs

Neuroendocrine Tumors (NETs) | Last Active: Oct 25, 2023 | Replies (20)
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@stevestenberg31

How old were you when you had the liver transplant? Did you have NETS anywhere else? Are you now cancer free? What hospital? Do you know what the criteria is to be considered for a liver transplant?

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Replies to "How old were you when you had the liver transplant? Did you have NETS anywhere else?..."
millds | @millds | Oct 19, 2023

Hi,
Great questions. I was 64. It was not a “choice” that was planned for in advance. Resection surgery for NETS resulted in failure FOR ME of my liver and thus my kidneys. It was a supreme effort chosen in an attempt to save my life. Praise God it worked.
Please know I am forever grateful for my donor and doctors. I have had 6 incredible years, but it is not a cure. It can return at any point. I am monitored very closely, but due to anti rejection meds, I am also more susceptible to other cancers. Research and in depth discussion with Dr. Is very important when starting down this path.
Would I do it again? In my situation with hours to live and the gift of the last six years? Yes. Is it easy? No.
It may limit some treatment options as well.
The criteria can be found on line and is relative to your center. You have to live within a
few hours of the center.
Best of luck !

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