← Return to PRRT for NETs: Questioning whether I should continue or not

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@amk1122

I had scans couple of times. Although there was no shrinkage or tumor removal but at the very least there is no progression seen through the scans. But this weight loss issue has me worried. Initially it was swift and by the end of 4th cycle I had lost 20 lbs. Since then in last nine months I have lost another 5 lbs and started to look very thin and it's scary. Hopefully someone can describe their own ordeal as Dr. said he thought the weight loss should be over by now and doesnt have much to say. Feel very helpless and wooried.

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Replies to "I had scans couple of times. Although there was no shrinkage or tumor removal but at..."

Hello, amk1122.
I have just finished my 3rd round of PRRT. I've also lost weight (20lbs). It seems like a constant battle to maintain weight. I'm not sure if its the carcinoid, the PRRT or the octreotide. I got nervous when I went down to 140. So regardless of appetite I made myself eat everything, including alot of Ice Cream and In-n-out. After I gained some weight back, I started eating healthier and alot of protein food and drinks. I'm still 5lbs down, but it doesn't
seem like the insurmountable struggle it was.
Good Luck