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@dandl48

@protonpain I feel your pain, how old were you when you had the Proton Therapy and where did you have it? I think you were one of the first to have this treatment. I just celebrated my 3 year anniversary with my PSA still at < 0.1 I do have problems but not as bad as you. What's an erection, let alone ejaculation? No pain in urination and only get up 1 or 2 times at night. Do suffer from a shrinking penis. No problem with rectum sphincter control. I was 72 when I had the 5 treatment Proton treatment with ADT before along with the balloon inserted. Sounds like you didn't get the balloon inserted, Correct? I was 4-3 with Gleason. For me and my wife being cancer free was and is more important than intercourse, but that's just us. Where did you have the treatment?

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Replies to "@protonpain I feel your pain, how old were you when you had the Proton Therapy and..."

I was 64 when I had the treatment at MD Anderson. Oh yeah, #9 on my list - shrinking penis!
Yes, I did have the balloon insertion. PSA's have been < 0.5 consistently. You are correct, being cancer free is pretty good.