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Began folfirinox treatment - have a few questions

Pancreatic Cancer | Last Active: Oct 27, 2023 | Replies (54)

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@lisn

We have found a remedy for the taste he's been complaining about! As time went on, he started to feel that it was a chemical taste and it was present all day, beginning with eating breakfast and going through the day. I saw on the MSK website that they had several mouth rinse suggestions. What's working for him is the baking soda and water rinse throughout the day. It seems to neutralize the chemical taste.

Unfortunately though, he still has persistent nausea up until day 12. He had a vertigo attack yesterday and the physical therapist suggested that he pre-medicate for his next follow up appointment with an anti nausea medication. She recommended Zofran. His oncologist agreed to prescribe it because the Reglan that he's been taking is not working.

I'm hoping that he'll get some much needed relief from the Zofran.

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Replies to "We have found a remedy for the taste he's been complaining about! As time went on,..."

I hadn't thought about the baking soda rinse. Glad that helps! Re anti-nausea med before chemo, two things. First, what premeds does he get at chemo? Mine include Zofran, dexamethasone and Emend; all are designed to combat nausea, and they're administered via the port before I get any chemo drugs. Second, I have prescriptions for both oral Zofran and oral Compazine. I was told to alternate them as needed to control nausea at any time during the chemo cycle. If the Zofran alone doesn't work, maybe the combo would.

Medical cannibas has helped me with my nausea. I take a tincture of 1:1 ratio , one part thc and one part cbd. It's called Harmony. I've had 6 fulfirnox treatments and I have been able to stop Zofran completely and just use cannibas for nausea. It has worked for me.

Regarding nausea: I had good results with generic Zofran and generic Phenergan. The latter made me tired, so it was also helpful for overnight. And, the instrux were to stagger the drugs -- that if Zofran didn't last the full 8 hours (it didn't), I was allowed to take Phenergan at hour 6 or so.

My onc. initially wrote for generic Zofran and generic Compazine; the latter is well-known as an anti-nausea drug.

I'm too tired to look up the generic names, but drugs(dot)com is a very helpful website for such stuff, including side effects. Good luck.