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Psychological effects of living with neuropathy
Neuropathy | Last Active: Dec 1, 2023 | Replies (106)Comment receiving replies
@dbeshears1 Hi, Debbie! I thank you for your encouraging words! Yes, this IS a grieving process. It's a change in our lives that affects each of us in different ways. And an occasional pity party is not bad as long as we come out of it with a renewed sense of focus on the positive!
One positive is finding this group of caring, compassionate people (like you) who understand and know exactly how I feel.
Replies to "@dbeshears1 Hi, Debbie! I thank you for your encouraging words! Yes, this IS a grieving process...."
Two days ago I had my first visit with a neurologist. I was referred by my family doctor (who is actually a PA) because I was having some memory issues which I hadn’t been bothered with up until a year or so ago. I’m sure glad I saw the neurologist because she gave me a lot of advice and
knowledge that were certainly new to me. She had me do a series of tests to ascertain my memory level and I have to admit those tests were quite tough. The neurologist told me that my memory was not a serious situation and any difficulties I have had in the memory arena were caused by things not directly related to my brain. She felt that Alzheimer’s might not end up any sort of major problem for me. For many years I have had a severe chronic illness called Panhypopituitarism which means that there is no working pituitary gland in one’s head. All one’s endocrine hormones must be taken via pill or injection. The neurologist told me that my memory issues were basically related to the medication’s side effects and since I will have to take the meds forever, some memory issues will always be part of me. She actually felt my memory wasn’t such a big deal, mainly because I’m very much fascinated by anything to do with words and learning. For instance, solving puzzles, especially crosswords are a big part of my spare time and I probably solve twenty or thirty New York Times crosswords every day. She made me promise to never stop doing those puzzles as they are a big part of keeping the memory issues at bay. Thanks for so patiently reading this slice of my personal history.
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I hear all of y’all,so good to see and read your input.
I’m @83 yrs. Last chemo was 8 months ago. 6 in.of sigmoid removed after stage 3 colon. Now ! Numb and tingling hand and feet,no pain…tried gabapentin no luck.finally Igot an appointment with a neurologist that scheduled a nerve conduction study and electromyography test.(upcoming) in the meantime I’m psychologically damaged. Those around me seem tired of my wining, so ! Now I avoid them. Maybe 🤔 I’ll go fishing.