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Tips for getting off Flomax (tamsulosin)?

Prostate Cancer | Last Active: Jul 16 9:29am | Replies (29)

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@protonpain

Oh I'm so envious. Its been 9 years since I had Proton therapy for my mild prostate cancer treatment, and I still have a basket full of issues. 1) can't get a full erection or even keep the 80% I can get; 2) can't ejaculate; 3) takes a long, long time to get to a mild orgasm; 4) painful urination most of the time; 5) have to pee about every hour to an hour and a half; 6) get up at least six time a night to pee due to the pain waking me up when my bladder fills with just 3-4 oz; 7) bladder wall has nonhealing scarring from the radiation which causes the pain; 8) and I sometimes have loss of rectum sphincter control (several "accidents" have happened over the years).
I have been to 5 different Urologist over this time; tried Hyperbaric therapy twice; several drugs; so far no solutions.
Like I said, I'm so envious.

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Replies to "Oh I'm so envious. Its been 9 years since I had Proton therapy for my mild..."

I thought I had it bad. Nine years is a long time. I'm 3 years post brachytherapy, and 3.5 years post radiation. My issue is the constant blood in my stool from the non-healing scarring from radiation in my lower intestine. I do occasionally have some pain during urination. Tamsulosin 2 days on and 1 day off works best for me. Weening myself off the drug was a no-go a year ago. I certainly would like to stop. Nothing to eat or drink after 7pm will usually get me 5 - 6 hours of sleep without having to visit the john. Now, the 2 ibuprofen with my evening beverage may help with the sleep, too. I'm seeing another urologist next week. I'll post again if he gives me some new ideas on the scarring. Hang in there.

I am trying the hyperbaric oxygen therapy right now, and had high hopes for success! I am on tamsulosin twice daily and have troubles day and night