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@kseanob

Myelofibrosis. Given 2 years max without transplant.

Good to know it's not a well-documented GVHD "thing." I've been having nightmares about it chomping on her arteries like something out of Pac-Man.

Thanks for your prompt answer.

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Replies to "Myelofibrosis. Given 2 years max without transplant. Good to know it's not a well-documented GVHD "thing."..."

@kseanob, I had a bone marrow transplant 4+ years ago and have my ear on the grapevine for all thing GVHD. It can affect so many aspects of our body and can cause myriad issues. But the aneurysm such as your friend had isn’t one I’ve heard of personally. I’m sure that had her doctors and nurses scrambling big time!!

GvHD can cause vasculitis of the blood vessels…an inflammation where they can swell and thicken. But I would think her doctors have checked for this. Steroids can also harden and weaken the structure of blood vessels. But at only 11 months out your friend most likely wouldn’t have been on long term steroids yet.

When she’s ready or if you want to intercept, there are a number of discussions here in the forum with others who have had SCT/gvhd.

~Chronic GVHD ~ Let’s talk about it!
https://connect.mayoclinic.org/discussion/chronic-gvhd-lets-talk-about-it/
There are also some more positive conversations! Because this transplant did just give your friend a second chance with life!

~Snapshots of hope: Life on the other side of transplant.
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
Does she have many GvHD issues?