Surgeon recommendations: How did you choose a surgeon?
I am waiting for biopsy results but a radiologist told me he is sure I have breast cancer based on ultrasound characteristics of a mass. Can anyone give me surgeon recommendations? I feel like I’m going in blind! Thank you!
Interested in more discussions like this? Go to the Breast Cancer Support Group.
I drove 3 1/2 hours to my cancer center, MD Anderson, in Houston. I think going to the Mayo Clinic would be worth the drive - it’s what 4 hours? A comprehensive cancer center can offer many benefits. One of which, the Mayo Clinic has a great reputation.
I stayed in a nearby Marriott hotel for appointments that I had to stay overnight, and before/after surgery. For some appointments I requested that they not be scheduled before 11:30 am and no later than 3 pm so I could drive in that morning and home before too late.
Radiation may be a week or it may be multiple weeks. My intermediate grade 1.6 cm DCIS, was a 3 hour outpatient BCS surgery (reduction in both breasts), 1 week radiation, and tamoxifen. I use the MyChart digital healthcare communication a lot, even sending photos of my breasts (after surgery) when I was concerned about red patches and wasn’t sure whether it was worth the drive to have the MD look at it. I’ve done a few video visits, one with the survivorship program, and regular follow ups with the rheumatologist about my osteoporosis.
Radiation can often be completed at a facility closer to your home. Your radiologist may have a some facilities that can provide what you need. I went to one of MD Anderson satellite sites. My sister in law in New Jersey, who drove in to Sloan Kettering Cancer center for care in NY, had her radiation near her home in NJ. West Palm Beach should have a quality radiation center that could carry out the prescribed therapy ordered by the Mayo Clinic.
I can’t tell you how my stress level was lowered once I contacted MD Anderson - they immediately started sharing with me what steps I needed to take to begin my journey. They provided me with options, we discussed the research behind some options (I like research, a comfort zone), and let me make the decisions.
I wish you well. Please let me know if you need more information that I can help with, or want to stay in contact.
@triciaot
Two great recaps of your journey and good advice for everyone! Thanks for sharing.
Thank you very much for your input. It's very helpful . Wishing you the best of health ! ❤️
Thank you for your thorough answer. I find it really helpful. I wondered if going locally would be a bit more personal or if going to a big place like Mayo would be like dropping into a machine, but the local medical care where I am feels really backward and inadequate.
Does anyone know how to begin at Mayo? I don’t even know who to call?
I just had first consultation with Mayo this morning ( virtual ) and I like it . From the moment I started with them they are pretty quick with communication, starting patient portal, setting up the appointment etc and very professional. Let me look for this link I used to reach out .I know - everything is overwhelming . Many ladies in this group were saying that we have to feel comfortable with choices we make and for me piece of mind is to choose the best doctors and facility which has state of the art equipment . Doing my research MC is all of that .
https://onlineservices.mayoclinic.org/NewAppointments/?screen=patient
I started with simple info and then Mayo Clinic contacted with me - very organized.
Do you know if I have to have someone with me at MC? I’m probably going to have to do this alone and I’m wondering if it’s possible.
You are so right. I was in the same situation as you local hospital seemed very different. Oh the tumor doesn’t look that big or I am going to refer you to someone else. Checked my insurance first to see if the local cancer center was in network well it wasn’t. I then started looking to VCU Massey Cancer Center which is 1 1/2 away. What a difference once I choose an oncologist after doing some research. The whole team was together. Every team member knew exactly what was going on. I can say if you live near VCU Massey Canter in Virginia I would recommend they highly. Was a person with breast cancer and not just an another number. And they mimick Mayo Clinic which is nice know.