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Skin squamous cell carcinoma (recurring)

Cancer | Last Active: Jan 24 7:27am | Replies (103)

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@maggielynn

I am going to consult with a oncologist pertaining to Libtayo infusion..... HAS ANYONE HAD THIS???? I understand there are risks, and would prefer not to do this infusion, however, my doctor is telling me I get reactive SQ with surgery, and need to have 5 more surgeries primarily on legs.
I still want to explore options.
Sincerely,
Margo (maggielynn)

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Replies to "I am going to consult with a oncologist pertaining to Libtayo infusion..... HAS ANYONE HAD THIS????..."

I have repeatedly asked dermatologists if there are other treatment options besides excision. All have told me there are none. ?? But so far these last 3 surgeries - though the cancers were very deep and aggressive -have not produced any new outbreaks. Doctors just keep telling me that at some point they will simply stop. It’s been 2 years and dozens of SCCs. So I have no experience with any other treatments beyond freezings or surgeries. They did prescribe a steroid cream this last round that I use twice a day for two weeks, pause, and then use as needed. That cream seems to have played a role in calming my skin after surgery. Since at the moment I have no new cancers, I think the cream must have helped. But who knows?

Oh no! So sorry! My last three (at this point) were MOHS excised in June and July. Very deep and very aggressive. And they are still weeks out from being closed completely because the healing takes so long on the legs. Since I’ve had trouble with sutures not holding and multiple infections, the surgeon didn’t completely close the wounds to let them drain. The drainage has made for lots of wound care, but no infections so far. And the steroid cream I’ve applied to the rest of my legs seems to have calmed the skin enough so that I’ve had no further occurrences. I know nothing about the infusion option you’ve been offered. I know that at my most desperate point, I would have considered almost any option. I’m sure you will study side effects and ask to talk to patients in similar circumstances who can give you their first hand experience of the drug involved. Be your own advocate! Let us know what you decide!