Does anyone have eye problems because of neuropathy?

Posted by terid @terid, Oct 5, 2023

I recently was told I have polyneuropathy and because I have tingling on the left side of my face my neurologist gave me a referral to a neuro-ophthalmologist. Has anyone gone through this. I also have a tiny Meningioma and I think that is why the referral. Can anyone help!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Hi. I'm in exactly the same boat: odd vision changes and a small meningioma. I've had laser eye surgery twice . My optician just referred me to an ocular neurologist. I'm really interested in how things go for you

REPLY

I have an extraordinary eye issue that started my whole journey with neuropathy. I have a 'bleed' of the capillaries at the 6 o'clock location of the optic nerve. The bleed is constant but cannot be seen with the naked eye. I am told that this issue has never been seen before and doesn't even have a name by the top ophthalmologist/neuro-ophthalmologists' at Mass Eye and Ear in Boston. I cannot believe I am the only person on the planet with this abnormality, and I know it started my neuropathy. Has anyone else experienced this or heard of it?

REPLY

Hi I have DADS-M which is a bad kind of peripheral neuropathy. I have had it now for over 10 years. Recently, I have begun to experience symptoms in the onatomic nervous system or the system that makes your heart beat and your body work as it should without conscious control. I have just finished three laser surgeries on my eyes because I have glaucoma. And I cannot take any drops because of my allergies. I also have optic nerve damage. The ophthalmologist told me that this damage is quite bad and over and above what would normally be the case for someone my age and without a family history of glaucoma. I also have a hard time distinguishing between light and dark, in certain lights, which has nothing to do with the glaucoma. I believe my gut is also involved as I have problems with aspiration of fluids. The spasms that are everywhere in my body are now affecting my swallowing. The food gets stuck in the oesophagus before it enters the stomach and also has a hard time passing into my intestine . These symptoms are not often listed as part of my illness, but I believe they are connected. My demyelination is quite advanced, and the eye is heavily myelinated so it’s a good target. I can’t say that it is directly related for you, but I am very sorry to hear that this is happening to you. in my case, it’s the most disturbing symptom because I do not want to lose my vision. If anybody else with this diagnosis has these issues I would really like to hear from you as they are not common. I wish you the best and hope that it’s not connected to the neuropathy . From the symptoms you have described it sounds like you need further investigation. Our eyes are so important. Keep bugging your doctors until you find out what’s going on. All the best and welcome to the forum. It is very helpful. I have never talk to anyone before with my diagnosis.

REPLY

It just so happens that Brain and Life magazine has an article regarding neurological issues and vision in the current issue. It may or may not apply to your situation. Here is the link.
https://www.brainandlife.org/articles/how-to-lower-risk-neurology-related-vision-loss
Brain and Life magazine is free for delivery (sign up online) or you can read the entire issue online at brainandlife.org
I've been receiving this neuro magazine for years. I hope it's helpful to someone.

REPLY
Please sign in or register to post a reply.