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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@leslie04

Hi everyone my name is Leslie and I am 46 years old. I have sensory ganglionopathy. With my disease I have hard core neuropathy in my hands and feet. I have had this for a year. I was on Gabapentin for a year to realize it made everything worse. Got tapered off and things got a bit better. I have equilibrium, balance, and dead nerves. They go from my elbows to my hands. And from my knees to feet. That is why my neuropathy is so bad. My question is do compound creams work for neuropathy?? And if anyone needs to chat. I am no expert with any of this. But am a good listener and think I could benefit from other’s experiences.

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Replies to "Hi everyone my name is Leslie and I am 46 years old. I have sensory ganglionopathy...."

Hi @leslie04, There is another discussion started by @jeffrapp that might be helpful for your question on do compound creams work for neuropathy.
--- Topical creams and lotions for Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/topical-creams-and-lotions-for-small-fiber-neuropathy/

My podiatrist ordered a compounded cream at a pharmacy for my foot pain.
I think it’s helping a little, doesn’t take pins and needles away,but definitely takes edge off my pain.
The pain is so bad sometimes I can’t even walk.