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Functional Neurological Disorder (FND)

Brain & Nervous System | Last Active: Nov 8, 2023 | Replies (123)

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@pkh3381

What I have asked of my Mayo Neuro is a referral to another neuro to follow existing conditions that have been left "unfollowed" after seeing my outside movement disorder specialist, who referred me to this Mayo Neuro. I have brain aneurysms which are supposed to be followed annually with a Brain MRI, I have white matter disease, and many other neuro conditions. I explained this to him when I asked for the referral. This Mayo Neuro hasn't even officially recognized the FND.......he keeps referring to "my dizziness", which is not the case! My outside neuro is the one who gave me the FND Dx. I also asked him for an order for an updated neuro psych exam for my MCI, for a Mayo Program, called Habit, I believe. It has been over a month and he continues to ignore me. I tried to get an appt with a specialist for my Peripheal Neuropathy, and went thru a GI Mayo Dr instead, but he also tells me I must go through this Mayo Neuro, which is ridiculous. Whey do schedulers keep referring to "self-referral", when there is really no such thing, according to what I have encountered? I am so fed up that I am, once again, wondering why I keep thinking Mayo could help me with my medical problems, when all I do is come up against walls? I am considering just giving up, which is what I think the Mayo Neuro wants me to do, and even canceling my upcoming GI appt. I am just beat down and tired, and completely discouraged and frustrated with trying to "advocate" for myself!
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Replies to "What I have asked of my Mayo Neuro is a referral to another neuro to follow..."

@pkh3381 I can imagine you are feeling exhausted. You may consider contacting Patient Experience:

Mayo Clinic Office of Patient Experience
Phone: 844-544-0036 (toll free)
Email: opx@mayo.edu
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Staff are available to discuss comments or concerns you may have regarding your medical care or privacy at Mayo Clinic.

When is your GI appointment?

I am sorry to hear your frustrations. I am also dealing with dizziness here in Ohio for more than a year, after all the tests they still have not figured out the cause, I was thinking Mayo but after hearing your experience, I will deal with Dr's locally. If you have miner problems I guess it is hard for them to figure out. Hope you find an answer.