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Are you taking Reclast for osteoporosis?

Osteoporosis & Bone Health | Last Active: Feb 14 5:27am | Replies (267)

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@ann23

Hi folks. Good to hear some people have had no problems using Reclast.

Unfortunately, I had a series of adverse reactions after a Reclast infusion in 2022. Starting the next day, developed double vision and after-images, severe dizziness, severe muscle and bone pain, and complete exhaustion.

Two days after, those symptoms started to fade, but I developed bilateral uveitis (diagnosed by an ophthalmologist). It was severe enough to require six weeks of steroid drops, and then a lens replacement.

I see nothing in the literature about any connection, but I do have several autoimmune disorders. I am also in a female in my sixties, and the literature does indicate that women over sixty are most likely to develop serious eye problems (even blindness) after Reclast infusions.

In closing, I suspect that serious eye problems after Reclast are more common than Novartis reports. There are a number of professional articles on this subject, going back decades. And the FDA believes only about 20% of all adverse reactions are ever reported.

In closing, know that I’m not giving anyone medical advice about whether to take a medication. I’m only describing my adverse reactions because I sincerely hope no one else ever experiences the same.

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Replies to "Hi folks. Good to hear some people have had no problems using Reclast. Unfortunately, I had..."

@ann23 I also have autoimmune disorders as well as kidney issues. My doc is doing a 20% dose with IV hydration and slow infusion. Wonder if you could ask about that. Have you done other meds?

I go to a retinal specialist to monitor epiretinal membrane. I asked him about Reclast since I will probably do that when I finish Tymlos. He said that a small percentage of people experience eye inflammation, my EMR is now stable enough that my risk is about the same as normal and if I did develop eye inflammation it could be treated with steroid eye drops.

So it is a potential issue, but he did not see that as precluding Reclast. Of course I would also know to get in contact with him immediately if I started to have a problem.

How far back does Reclast go? I had thought it was pretty new.