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How do you diagnose myasthenia gravis?

Autoimmune Diseases | Last Active: Feb 28 7:26am | Replies (36)
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@harley22

I’ve decided I’m not doing it.
I’m not willing to risk it because from what I’ve read and heard, the plasma exchange may not work for me, or the symptoms get better, but no for long and more treatments are needed.
I’ve been thru a lot and am afraid to even try this, when I would much rather take a drug which has success rate.

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harley22 | @harley22 | Oct 16, 2023

Last Nov I perforated my small intestine and had emergency surgery, and became septic.
For 6 mos my incision didn’t heal, I had a wound vac, and was on antibiotics around the clock for weeks, IV.
I am really afraid to have this line inserted, and a risk of infection happening to me again, hence my decision to not go through with it.
Unfortunately my insurance co won’t approve the drug Retuximab until I meet the protocol which plasma exchange is one of them.
The other two, IVIG and steroids have been done in the past, and they did not work for me.
Only thing left is the plasma exchange, that’s why my neurologist suggested it.

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