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Frequent dislocations and burning pain and numbness

Bones, Joints & Muscles | Last Active: Oct 16, 2023 | Replies (4)
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@gus1225

They gave me a referral to Mayo Clinic, but that's it. I told her they did not accept me so she said she didn't know what to do. It's really hard to find someone in ortho who is willing to work with people with EDS.

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Replies to "They gave me a referral to Mayo Clinic, but that's it. I told her they did..."
gently | @gently | Oct 16, 2023

gus1225, I have heard that Mayo doesn't accept the EDS diagnosis. Which is different than not accepting you. I have heard that there are good EDS mds elsewhere. I'm trying to find old posts that identify those doctors. Maybe a fellow EDSer will respond.

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