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Frequent dislocations and burning pain and numbness
Bones, Joints & Muscles | Last Active: Oct 16, 2023 | Replies (4)Comment receiving replies
Hi @gus1225, it may be worth your time to check out the discussion titled: Doctors for EDS, https://connect.mayoclinic.org/discussion/doctors-for-eds/. As @gently mentioned, it is a difficult diagnosis.
@gus1225, because your ortho is unsure of what to do, have you specifically asked them for a referral to a specialist or someone they recommend that could help with a diagnosis?
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They gave me a referral to Mayo Clinic, but that's it. I told her they did not accept me so she said she didn't know what to do. It's really hard to find someone in ortho who is willing to work with people with EDS.