1. < Neuropathy

Peripheral nerve stimulators

Posted by sparshall @sparshall, Jan 14, 2020

This is a long shot, but I’m looking for people who have used implanted peripheral nerve stimulators (PNS) to control nerve pain. They block the pain signal to the brain. Stimrouter and Stimwave are major brands. These are NOT the same thing as spinal cord stimulators, of which there are many brands. I’m about to have a Stimwave implanted to block intractable pelvic and leg nerve pain.

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oceancitymike | @oceancitymike | Aug 17, 2023
In reply to @drg24242 "First, thank's for your very important information. In Febuary 2021 I fell down 10 steps and..." + (show)
@drg24242

First, thank's for your very important information. In Febuary 2021 I fell down 10 steps and shattered my elbow. The dr's used 12 screws and 2 plates to put my elbow back together. In Febuary 2022 they had to remove all the metal do to nerve damage being created. I developed crps from the elbow to the finger tips immediately. Since June the crps has expanded up to the side of my face. After trying several thing's like nerve block's with no help, my doctor want's to try the Abbott Proclaim XR SCS System nerve stimulater trial in about 2 week's. At this point I'll try anything to get some pain relief. 15-20% , like you, sounds wonderful at this point. Please comment about product and overall us for my condition. Thank's Darryl

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Did it work.?

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philly318 | @philly318 | Oct 7, 2023

I am doing research about the Nalu device. My pain management doctor recommended it. I have severe scoliosis among some other things and I’ve been on Percocet four times a day for years, so I wanted to get as much feedback as I could to make a decision if this would be right for me.. I have yet to find a lot of reviews if anyone has some advice, I would greatly appreciate it.

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docb99 | @docb99 | Oct 7, 2023

I’ve had unremitting neck and head pain for over a year. No disk bulges suggesting surgery. After multiple cervical injections at all levels that didn’t work, I asked for and received a cervical plexus block. That and a greater occipital block I also asked for and received have helped. However the pain center doc I see still recommended a Sprint temporary device. Docs do seem to recommend them and I’m not sure why.

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sebringsully | @sebringsully | Oct 8, 2023

I finally broke down and bought the Bemer and I am so happy I did period. You should all look into purchasing a Bemer. It has been extremely helpful for me. I have only had it a week and it’s already helped.

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2 replies
jakesgram23 | @jakesgram23 | Oct 9, 2023
In reply to @sebringsully "I finally broke down and bought the Bemer and I am so happy I did period...." + (show)
@sebringsully

I finally broke down and bought the Bemer and I am so happy I did period. You should all look into purchasing a Bemer. It has been extremely helpful for me. I have only had it a week and it’s already helped.

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Please explain. What is that & how has it helped ?

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pat2628 | @pat2628 | Oct 9, 2023
In reply to @sebringsully "I finally broke down and bought the Bemer and I am so happy I did period...." + (show)
@sebringsully

I finally broke down and bought the Bemer and I am so happy I did period. You should all look into purchasing a Bemer. It has been extremely helpful for me. I have only had it a week and it’s already helped.

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Did you buy the Kloud? Are you using the mat and the smaller piece for hands and feet

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bettyg81pain | @bettyg81pain | Oct 9, 2023

Has anyone ever heard of taking L-LYSINE?

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1 reply
valec | @valec | Oct 16, 2023

My pain management doctor is trying hard for me to get this. I’m very concerned about getting an implant on my spine. But he says there’s nothing else for me. I’m on lyrica and medical marijuana gummies which help very little. I hope whatever decision you make is the best for you.

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justandie | @justandie | Oct 16, 2023
In reply to @bettyg81pain "Has anyone ever heard of taking L-LYSINE?" + (show)
@bettyg81pain

Has anyone ever heard of taking L-LYSINE?

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I've heard of it, and it's been mentioned several times in this blog. Very little discussion, however. My understanding is that it's an over-the-counter supplement. Is this right? Can someone relate some experiences with it, please. And how does it work?
Thanks.

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lisavila1 | @lisavila1 | May 19 6:27pm

I had the Sprint trial about 3 months ago and it took all the pain away, 95%! However, the leads migrated and then they had to remove them. This proved that an implant would block the pain. About 6 weeks ago I had the Stimrouter PNS implanted. Sadly, no luck on this one. Next Thursday I'm meeting with the Bioventus rep and surgeon to try new programming but I'm not holding my breath. The trial was amazing but the permanent implant is simply not working. Let's see what they will say during my appointment (Stanford).

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