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PRRT for NETs: Questioning whether I should continue or not

Neuroendocrine Tumors (NETs) | Last Active: Oct 22, 2023 | Replies (24)
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@amk1122

Hello,
I have a question regarding the wight loss after the PRRT treament. How much wight did you loose and how long the weight loss continued. I myself lost about 20 lbs by the end of 4th infusion. Since then, it has been 9 months and I have continued to loss with but at a much slower pace, but I am getting really worried about it as I thought it would stop and I will start to gain weight at some point. Pleast let me know how was your situation.
Thanks!

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Replies to "Hello, I have a question regarding the wight loss after the PRRT treament. How much wight..."
Teresa, Volunteer Mentor | @hopeful33250 | Oct 17, 2023

Hello @amk1122 and welcome to the NETs support group on Mayo Connect. I am sorry to hear of the weight loss you've experienced during the PRRT treatment. We have many members here who have had PRRT and perhaps someone else can provide you with their experiences with weight loss. Have you had a scan since you finished the PRRT?

What does your doctor say about your weight loss?

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