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Possible Creon side effects: What helped you?

Posted by ajh5285 @ajh5285, Feb 14, 2023

I have a variety of Side Effects that are all listed as possibly related to Creon, the most troublesome being gas which seems to last hours. The NP I saw in the last week or so invited me to make a trial of not taking any Creon to see what happens.

Has anyone else had any experience with this approach?
Would you recommend it?

If I were healthy, I would be more willing to be adventurous...

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

henfayp | @henfayp | Oct 16, 2023
In reply to @stageivsurvivor "For bloating and gas, the OTC products Phazyme and Gad-X with Simethicone are helpful. If consuming..." + (show)
@stageivsurvivor

For bloating and gas, the OTC products Phazyme and Gad-X with Simethicone are helpful. If consuming high-fiber vegetables like broccoli, peas, corn, cabbage, cauliflower, Brussels sprouts, they require the enzyme alpha-d-galactosidase for digesting them. It is not blended into any pancrealipase. The OTC product Beano is alpha-d-galactosidase and will prevent gas.

One 36K capsule might not be enough enzymes for your particular diet. An on-line dosing calculator will be helpful in determining the amount of pancrealipase required.
https://digestthis.ca

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The blurred vision showed my pupil is somewhat dilated by the Creon. Anyone else has this side effect and how to deal with it?

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crickard70 | @crickard70 | Oct 16, 2023
In reply to @henfayp "I am taking Creon 36000 per meal for two weeks now and now I have blurred..." + (show)
@henfayp

I am taking Creon 36000 per meal for two weeks now and now I have blurred vision, one of the side effects lists also bloating and gas. How does one handle these?

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I also have blurred vision I think is side effect

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1 reply
henfayp | @henfayp | Oct 16, 2023
In reply to @crickard70 "I also have blurred vision I think is side effect" + (show)
@crickard70

I also have blurred vision I think is side effect

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Did you see an eye doctor to see what can be done? I am making an appointment with my eye doctor.
Anyone else has this problem and how did you deal with it?

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vector | @vector | Apr 18 11:16am
In reply to @ajh5285 "A bit of a tangent, but the gas and bloating from not having the Creon dose..." + (show)
@ajh5285

A bit of a tangent, but the gas and bloating from not having the Creon dose just right adds complications to trying to figure out what to wear for pants.
I have to avoid anything that rides too high on my belly because that adds to the low level pain from the tumor itself - an unpleasant constrictive sensation.
Ideally pants would also have ribbed knit cuffs, to keep me from tripping since my feet are numb a lot of the time ("Chemo Feet") and I get in trouble if I'm not watching where I'm putting them.
Anyone have a recommendation for low rise pants with ribbed knit cuffs for a short woman? (5"4" weight 127 lbs, when last checked 10 days ago)

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I may take heat for this, but what about ladies’ pregnancy pants.

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