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How do you diagnose myasthenia gravis?

Autoimmune Diseases | Last Active: Feb 28 7:26am | Replies (36)

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@kay56

A member of my MG support group was on plasmapheresis. He found a neuorologist who knew MG and with proper medication, he no longer needs the very expensive, and difficult to get to a facility that provides this treatment. He has been stable since he started the recommended medication and is back to a 'normal' life. When he was getting frequent plasmapheresis, his symptoms were such that he could not drive, just stayed dependent on that treatment but never improved to a 'normal'. The medication he now takes eliminated the need for Plasmapheresis, IVig, and stabilized his MG. He is much happier not being dependent on plasmapheresis. This is the first case of MG that I have heard of being on such treatments as you are receiving for so long.

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Replies to "A member of my MG support group was on plasmapheresis. He found a neuorologist who knew..."

My case is refractive and a very difficult one to treat. There are drawbacks to every med for this so far and we’ve tried several. Plasmapheresis doesn’t leave me in bad shape and my only ill effect is compromised immune system which also comes from the autoimmune issue.

OK, you've peaked my interest. What's the medication you refer to ?