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DiscussionHas anyone else had pain return after reducing pred by only 2.5 mg?
Polymyalgia Rheumatica (PMR) | Last Active: Oct 24, 2023 | Replies (53)Comment receiving replies
Replies to "I'm just coming up on my 7th anniversary of my PMR diagnosis. The early years were..."
Thanks for your comment, Raven1955. It does seem that this is going to be a very slow, long process. I think I was frightened into wanted to get off prednisone ASAP because of the effect it could have on my bones, but as it's the only thing that keeps the pain under control, it's looking like I'll have to resign myself to taking pred long term. I've started taking a biophosphate to help protect my bones, even though it leaves me with mild abdominal cramps the day after taking the medication (weekly). I've also upped my calcium supplements, take 2,000 IU of vitamin D daily, and eat as many calcium-containing foods as possible. I also make sure I exercise every day, either walking or doing Tai chi. So fingers crossed all this will keep my bones from breaking down. I'm glad you've found a way to avoid flare-ups, and it's encouraging that you have been able to get down to 1 mg a day!