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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 6 days ago | Replies (6794)
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@tabitha

I have Ehlers-Danlos Syndrome 3.I
I am in pain 24/7 of varying degrees. I have been prescribed Tapentadol (Palexia) which is this side of useless.
I attended the Pain Clinic in Norwich and because I missed the last class of Attitude Commitment Therapy (I called in to say I was in terrible pain and couldn't make the journey) I was informed they could do nothing more for me which prevented me from getting hydrotherapy, physiotherapy, acupuncture and counseling.
So that's my present situation.

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Replies to "I have Ehlers-Danlos Syndrome 3.I I am in pain 24/7 of varying degrees. I have been..."
Justin McClanahan, Moderator | @JustinMcClanahan | Oct 14, 2016

Hello tabitha and welcome to Connect. It sounds like the side effects of Ehlers-Danlos Syndrome can be very frustrating. I invite you to check out some of the following discussion threads where EDS has been discussed by other members:

- The Disorder You May Not Know You Have http://mayocl.in/2bnkbGt
- Searching for Adults living with scoliosis, thoracic stenosis http://mayocl.in/2eoGfT4
- Shoulder Dilocation and Hypermobility http://mayocl.in/2edL5Oa

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