I have Ehlers-Danlos Syndrome 3.I
I am in pain 24/7 of varying degrees. I have been prescribed Tapentadol (Palexia) which is this side of useless.
I attended the Pain Clinic in Norwich and because I missed the last class of Attitude Commitment Therapy (I called in to say I was in terrible pain and couldn't make the journey) I was informed they could do nothing more for me which prevented me from getting hydrotherapy, physiotherapy, acupuncture and counseling.
So that's my present situation.