Are wobbly legs with PN caused by muscle weakness or fear?

Posted by jrob @jrob, Oct 5, 2023

I've had PN for years but suddenly when there are stairs with no railings or very uneven surfaces my legs wobble uncontrollably leading to a fall. My neurologist recently said I'm strong and there should be no reason for this and I should find a good psychiatrist. Would like feedback on this because it sure feels physical to me.

Interested in more discussions like this? Go to the Neuropathy Support Group.

@imagine1

Yes, it's especially tough walking first thing in the morning, for sure! I have finally accepted I need a cane, so am using one now. I'm glad this symptom isn't in my head. Thank you for sharing.

Jump to this post

U can throw away cane if u get into a program that develops ur muscles and core. That’s hard work and many are to lazy

REPLY

Agree with above post on strength training. Also consider water classes as water adds resistance and has shown to improve balance so two pluses in one. I have recently come down with a condition that doesn’t allow me to get in the water so I have been doing a GiGong video thst is really great. Lots of stuff on YouTube you can do.

REPLY
@imagine1

Yes, it's especially tough walking first thing in the morning, for sure! I have finally accepted I need a cane, so am using one now. I'm glad this symptom isn't in my head. Thank you for sharing.

Jump to this post

Yes, those first steps out of bed are tough - in fact, I think they're downright dangerous. Most mornings I now opt for my walker until a hint of strength and steadiness returns. I sure am thankful for the aids that are available for home use that supplement the help from PT. I appreciate your comments, Dawn.
~ Barb

REPLY

I have mental health problems as well as SFN and like you, I thought it might be all in my head. What happened to you was a form of medical gaslighting. Under any circumstances, the physical must be ruled out before mental health becomes a factor. I actually reported my PCP to the state medical board when something similar happened to me. In my case, every single test I had came back normal which is pretty typical. Remember you know you better than anybody else. Trust your gut.

REPLY
@louise67

I have mental health problems as well as SFN and like you, I thought it might be all in my head. What happened to you was a form of medical gaslighting. Under any circumstances, the physical must be ruled out before mental health becomes a factor. I actually reported my PCP to the state medical board when something similar happened to me. In my case, every single test I had came back normal which is pretty typical. Remember you know you better than anybody else. Trust your gut.

Jump to this post

I agree 100% I disliked it very much when my GP said at my age (84) that my brain wasn't connecting with my knees when they seemed to loose strength and couldn't be relied on to use stairs with out a railing...I am doing full leg lifts for strength and carrying a walking stick for rail-less stairs...or unexpected dizzyness spells because of low BP.

REPLY
@efgh1020

To jrob—
I would find a neurologist in a teaching hospital or university setting, or one of the Mayo Clinic hospitals and be tested in various ways for the cause of your wobbly legs. If you have them, as I do, due to PN, of course you will have a fear of falling! Even before the wobbles, a handrail was a safety precaution.
If you don’t want to change your GP, this is an opportunity for him to be educated in the physical (not psychological) reasons for “wobbly legs.”) Peripheral nerves which are not getting the brain’s message to the muscles, aka PN, is the cause of my mobility disability. I work out with a PT and a PhD. PT student in a pool and a university PT clinic on my balance and strength. I also get iVIG infusions monthly.
I have improved on my balance and functionality, but still walk with a walker, and stairs are a challenge I work on under the guidance of my PT at the clinic. I do not try stairs at home, nor anywhere else. I have a garage elevator and a stir lift to make my house accessible.
This has all happened since January, 2021. Yes, I have had counseling to deal with my loss of mobility, and all that entails, but “wobbly legs” and difficulty climbing stairs deserved more curiosity and support from your GP. You deserve a better answer.

Jump to this post

Hi @efgh1020
you said "Yes, I have had counseling to deal with my loss of mobility" has this helped you? What specialty counselor did you see or just a 'general' mental health specialist?

REPLY
@bigkupuna

Hi @efgh1020
you said "Yes, I have had counseling to deal with my loss of mobility" has this helped you? What specialty counselor did you see or just a 'general' mental health specialist?

Jump to this post

I had a teleconference weekly with a Licensed Marriage and Family Counselor who has been helpful to friends. She understood the anxiety and depression I was going through, and endorsed my earlier prescription for an antidepressant. She encouraged me over time, and reminded me of progress, acknowledged my sadness at not being able to walk into my wedding anniversary celebration. My husband also was a part of our sessions, since
Neuropathy, lack of mobility and the accompanying early pain affects the marriage dynamics and the extended family. She and I talked weekly for over a year, and her experience, understanding and encouragement helped greatly. I hope someone like her may also help you.

REPLY
@efgh1020

I had a teleconference weekly with a Licensed Marriage and Family Counselor who has been helpful to friends. She understood the anxiety and depression I was going through, and endorsed my earlier prescription for an antidepressant. She encouraged me over time, and reminded me of progress, acknowledged my sadness at not being able to walk into my wedding anniversary celebration. My husband also was a part of our sessions, since
Neuropathy, lack of mobility and the accompanying early pain affects the marriage dynamics and the extended family. She and I talked weekly for over a year, and her experience, understanding and encouragement helped greatly. I hope someone like her may also help you.

Jump to this post

Thank you for your openness!

REPLY
@njed

@jrob - Sorry to hear about your issue. I've had PN all numbness with poor balance for about 5 years and yes, uneven surfaces are difficult to manage so a suggestion would be to use of a cane. This can help you along and might prevent a fall. I went to an outdoor event this summer, 3 steps to huge deck and no railings. I didn't even attempt it. I need railing(s) to go up and down steps. Do what you need to in order to stay safe. I think with PN, numbness and balance issues with wobbly legs are all part of it. Some of us experience the same as you and we are not running off to see a psychiatrist. Take care! Ed

Jump to this post

I have central nerve damages to my lower back, caused by an unorthorised Epidural during a knee operation four years ago.
Very painful pins and needles in toes, at first, now it’s up the side of my ribs and stomach. The itching, which when you scratch it, hurts and feels like it’s on fire, when you try for some relief.
Know you shouldn’t, but it’s impossible not to.
Any suggestions welcomed.
Thanks in advance.
Graham

REPLY

I was prescribed Enstilar,?a topical spray, that you apply to the itchy area, and it does help relieve the itching. It’s made by “ Keo Pharma in Toronto. And it does help when you thoroughly clean your skin with “Cetaphil” ensures your skin is cleaned thoroughly. I use a face cloth in the shower and scrub where it’s it itches. Then apply the Enstilar mighty, rubbing it all over the itchy area. It’s pretty good.
Hope you find it helps
Graham

REPLY
Please sign in or register to post a reply.