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Conflicted on taking medication

Breast Cancer | Last Active: Nov 8, 2023 | Replies (99)

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@7318

I was diagnosed at 80 this year with DIC had a partial mastectomy and a MRI showed no lymph nodes involved or cancer in the other breast No radiation Was started on Tamoxifen 2 weeks post surgery Took 20mg then Oncologist decreased to 10 mg I took it for 3 months had no objections to taking drug Never missed a dose Hot flashes, sleep disturbances night seats and getting up to urinate 7 to 8 times a night was difficult But I took it but the sheer exhaustion and bone pain was very hard I could rest or nap when I needed This drug is an old drug been around a long time many women take it I was surprised that it was so hard on my body I stopped sent oncologist a message Well when I stopped it my legs and feet swelled up It’s been 3 months now and finally I think drug is mostly out of my system
I sent a message to Oncologist could I try 5 mg of Tamoxifen a day and a different manufacturer Went to the pharmacist got a different manufacturer Haven’t started it yet Dreading SE’s I see Oncologist next week and will talk to him Still have joint pain
But other side effects have improved I have been having acupuncture to see if might help and I always drink lots of water
Sorry such a long email
Sally

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Replies to "I was diagnosed at 80 this year with DIC had a partial mastectomy and a MRI..."

I’m 60 and started anastrozole in June. I had many/most side effects that you hear- constant headache, bad hand joints, moody, fatigue to name a few. My doctor and I agreed for me to stop taking it for 2-3weeks to see if side effects went away. I did feel back to myself after a couple weeks. I have now started Exemestane. On week 2 and doing well. I have been walking and exercising more, eating better and rarely have alcohol. I’ll hoping this will help.

Hi 7318:

I do find it unusual that your doctor put you on tamoxifen as you are not pre-menopausal.

As you did have some difficulty with it, ask if you can try one of the AI's.

Also, did the doctor say that al, that swelling was a result of going off tamoxifen or something else? Is your Internist and Cardiologist aware that that happened? Did anyone do anything about it????