My son had VP shunt surgery 5 months ago and has had intense abdominal pain ever since. The neurosurgeon who installed the shunt is only focused on whether the shunt is working, and sent us to a general surgeon. The general surgeon refused to help, and in fact prevented us from seeking a second opinion within the same hospital. The hospital's stance is apparently: "we've never seen this, so it's impossible".

We presented them with the "Right Lower Quadrant Abdominal Pain" case study cited above but they won't operate unless something is evident in a CT scan, and it isn't. We're scheduled to see surgeons in two other facilities over the next 3 weeks, hopefully one of them can help.

Has anyone had an experience like this? In the instance of a rare complication like this, do you have to find a doctor who has personally experienced it before in order for them to attempt treating it?