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Anyone else blindsided by oncotype testing?

Breast Cancer | Last Active: Oct 17, 2023 | Replies (28)

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@heyjude44

I had a very similar situation. I had surgery for stage 1 invasive lobular cancer. My margins and lymph nodes were all negative. I really liked my surgeon, but she said no chemo, and radiation would be my choice. No one even mentioned an oncotype test, so I was blindsided when I saw the oncologist and she gave me the results of that test. My score was 29 which meant I would benefit from chemo. I wasn’t prepared for that. I’m having chemo, but still upset about the lack of communication.

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Replies to "I had a very similar situation. I had surgery for stage 1 invasive lobular cancer. My..."

I had the same experience: Loved my surgeon, was pronounced cancer-free, thought I was done except for maybe targeted radiation, then had the oncotype-chemo piano dropped on my head. It took me 6 weeks to recover from the upset. Even now my reports say, "No disease evident." I think I'll pass on targeted radiation if recommended. What is there to target? Also, my doctors seemed baffled by my shock and upset. A brief mention in a mountain of pamphlets does not cut it.