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Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: 3 hours ago | Replies (125)

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@annielouise

Hi, I'll be 82 in a few weeks. My problem is ongoing cognitive difficulties associated with long Covid, for 9 months now. At its worst, I mix up dates and times for appointments, mis-read instructions, make the same purchases 2 and 3 times, or run out of pantry items because I've looked at, say, tuna and it registered as salmon. I've forgotten food in the oven and clothes in the washer for days. I'm not safe to drive a car. In my bad spells, it happens up to 20 times a day; on good days, its only 4-5 a day. It's worse when I'm fatigued and better when I take hourly "brain breaks". While I this isn't dementia, and I seem to be improving very slowly in general, it's going to go on for a long time and there's no guarantee it will ever be gone completely. I would greatly benefit from learning coping skills from others.

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Replies to "Hi, I'll be 82 in a few weeks. My problem is ongoing cognitive difficulties associated with..."

I empathsize. My coping skill - Check lists and checking them twice - like old Santa Claus.

I just read that there are some breakthroughs in understanding and treating long Covid. I had it and my doctor didn’t believe long Covid was real. It is real. Perhaps you can refer your doctor to a recent NYT article on long Covid.

I’m afraid that I am having some dementia issues and I’m a nervous wreck about it. My daughter (who I live with) doesn’t think I have dementia but I feel like I have signs of it. I’m off and on forgetful regarding names of people I used to remember easily and I also forget occasionally to get my laundry out of the dryer. These issues are periodic but scare me to bits. I’m not even sure what brand of doctor to see about this problem.

I have an autoimmune disease and long covid sounds so much like it! Try these things:
1. Hydration: make sure you get 32 oz of liquid daily and that your pee is light yellow.
2. Eat right. Move toward non-processed, low sugar, high nutrition.
3. Take a daily 20 minute walk aiming for one mile. Or break it into two or three walks. Outside air and sunshine plus movement helps. Do this even with lethargy.
4. Observe regular sleeptimes and if you nap, do it before 3pm.
5. Sublingual B-12, D3 and Magnesium and helpful for pain, cramps and focus. You might ask your dr for an anti-depressant which will help with focus also.
6. Each day, do something purposeful even if it is a household chore. Talk to a friend about anything else. Do something you enjoy.