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Have Bronchiectasis, recently diagnosed with pseudomonas
MAC & Bronchiectasis | Last Active: Sep 30 4:40pm | Replies (211)Comment receiving replies
I keep hearing of people on this forum who were given Meropenem for their Pseudo instead of all the other IV options. How are you tolerating it? Any side effects? Was it a slow drip every 8 hours? Some people do it twice a day instead. Did you have to go into hospital to get set up and for how many days? Then home with a stent? Sorry for all the questions but I am very interested to know since I have very chronic Pseudo that needs treatment. I would not tolerate oral options and did not tolerate Toby but you might do fine with the one week on and three off. Yes please keep us posted!
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HI, Yes, it's 3 X a day, every 8 hours, and it takes about an hour to drip through. I had a home health nurse come and set me up and show me how to do it. It's been OK to do, except I'm sleep deprived having to wait until 10 p.m. to infuse and don't get to bed before 11 p. I'm used to going to bed at 9:30! I take a nap during the day if I can, but you know how that goes. The infusing wasn't new to me as I did that for 4 months 9 years ago when I had MAC and Nocardia...then stayed on other oral antibiotics for 18 months. I haven't really gotten any side effects from the Meropenen. Yes, I have a PICC line in my upper arm as I did before. They put that in at the hospital. I don't know how/if I'll tolerate the Toby but I hope so. The other thing that is happening is I am really getting edema in my legs/ankles etc. I don't know if the extra saline nebs are doing it or from months of little activity. I'm trying to be more active now. Take care and hope you feel better. The Meropenen is helping me but this is a long term deal isn't it? I never even heard of pseudomonas! Darn...