← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 13 hours ago | Replies (7067)

Comment receiving replies
@ptawillis

Hi i am Willis Fraley Jr. 61year old male . I am a Physical Therapist and have Reflex Symphthetic Dystrophy.

Jump to this post


Replies to "Hi i am Willis Fraley Jr. 61year old male . I am a Physical Therapist and..."

How did you get a doctor to believe your symptoms. The Pain Clinic at the Hospital at the University of Pennsylvania in Philadelphia thinks I am crazy. They don't believe me when I describe my symptoms so now I have to seek out another Pain Center. This disorder is a nightmare!

I have chronic migraine, depression and anxiety. The pain clinic doctors insist I have too much stress and medication overuse headaches. My GP believes me, but my case is too complex for him alone. I sought out a new headache specialist (my third neurologist), who believes I have chronic migraine that is exacerbated by problems in my neck and jaw (TMD.) It took a long time - 10 years out of work (still), a lifetime of migraine - to get to just one of the causes of my daily migraine attacks. My pain clinic is still skeptical, but I know I am making progress, finally. I am a strong self-advocate, and I am waiting for the pain clinic physicians to get onboard. They provide me with botox and nerve block injections. It is also the only accredited pain clinic in my state, so I have to work with them. I await the day that the doctors and therapists get together and start working together. I see that as my job, to get each provider to exchange information with the others. It is not easy, but I find I must direct my own treatment. @agmc, if your current doctors don't believe you, seek out additional physicians until you find one who supports you. You don't necessarily have to leave your clinic, but instead increase the size of your team. The doctors hopefully will work together to treat you the best they can. I wish you all the best.

I seem to have very similar symptoms like yours. I have tried Botox and sterile injections, physical therapy, acupuncture,,Chiro lately. Nothing is working. I am thinking about neck disc replacement. I don't know if anyone could provide some info or experience here. I have gone to my family doctor asking for a pharmagenic? Test because I am sensitive to medications. He said that he knew nothing about it. It is a little discouraging.

Google Assurex. They offer pharmagenetic testing on a sliding scale based on income. If you are on Medicare, it is free. For all others, it is $75- $330, depending on income. My insurance wouldn't cover the $5500 test, so I paid on the sliding scale. It is a simple cheek swab. You do need to bring results to a doctor to interpret them for you, although they are easy to read. Give their toll-free number a call. I found it very helpful in selecting and changing meds.

you man crps now, the have changed the name