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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
I recently had an EMG, the diagnosis is mild-moderate Peripheral Neuropathy. I feel very fortunate in comparison to what I am reading here.
My PN feels like someone has both hands on my ankles and twists each other in opposite directions. I have had only two episodes in the last few months where I experienced total leg pain and only one was during the night.
Thinking back on this over the last year I remember times when I would have a misstep in my movements. I thought that it was possibly an equilibrium ear issue, but now I know it was the beginning of PN.
I actually feel that having two COVID shots and two boosters is what triggered it for me. I am done with the boosters forever.
I really hope that it does not progress to a point where I would need to consider an Rx, I have no desire to add any meds if possible.
I purchased a book titled "Defeat Neuropathy Now...In Spite Of Your Doctor". It is written by two doctors who operate the San Antonio Neuropathy Center in San Antonio, TX at this link
https://nervedoctor.info/
In their book, they delve into a listing of medications known to cause Neuropathy as well as some OTC items. Based on what they say I have dropped two meds I was taking and switched to another. This clinic markets two products and I am taking one of them Nuphoria CM Gold. Their other product is Nuphoria CM Nerve Defense which my PCP said she would not recommend due to a high Vitamin E level. She said that could cause bleeding.
My PCP said with there being no cure she could only recommend a product named Wise Men Healing Balm with Frankincense and Myrrh Essential Oils and that does offer relief in my symptoms. Use this link
https://wisemenhealing.com/
In addition, I am walking 2-3 miles 5-6 days a week. I also purchased a Vibration Plate made by LifePro. This machine comes with a lifetime warranty.
This link
https://www.amazon.com/gp/product/B07P5J12YC/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&th=1
I have read that vibration therapy is in its infancy. I try to use that daily in hopes that it will help with my balance which is not a big issue but an issue at this point.
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@golfgame
If I were reading a book I’d like to know why they wrote it and when the author is selling products that could cure/help Neuropathy I think I found the answer and would immediately put it where it belongs, in the garbage or a roaring fire.
I’d give more credence to your doctor's opinion than a couple people selling products under the guise of being physicians. The only help they probably gave you was how to disconnect from your money. There are new books, pills, and other money separation devices coming out daily with many ready to hand over their hard-earned money to them. Depending how much vitamin E are in those pills, perhaps the author will have a cure for whatever bleeding disorder or other problem you may have or be able to cure you of your hemorrhaging stroke that may be lurking. Sometimes neuropathy gets better like mine did. My neuropathy was most likely caused by seizure medication. That medication became unstable, and regardless of my dose was always at a toxic level so I had to switch seizure medications. Sometime later, the horrible, painful sensations went away and were replaced with numbness. I think it would be better to spend money on trying to find what actually caused the neuropathy, than try to cure it with some magic pill. I’m not about to spend my money to line someone else’s pockets, whose intention it was to cheat me.
Just my 2 cents worth.
Take care,
Jake