← Return to Mystery illness — pain in abdomen, back, chest, and head; no rash

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@everwing

@SusanEllen66

My father lives in France, which is where we're pursuing this; and unfortunately yes, referrals here are very necessary. We are thinking of trying to see if we can get something with a rheumatologist in particular without one, though, since the internal medicine wait is so long! (And yes, at least he is on a cancellations list! Just have to keep fingers crossed, etc.)

I'm so sorry to hear about your multifarious woes 🙁 My sister has fibro alone which causes her a tremendous amount of pain, so I can't imagine how much you're dealing with with all those things going on at once! Still, I hope there are better days ahead, either in terms of pain management or just less pain in need of managing (or ideally: both!).

What you said here - "I live the best life I can but I’m frustrated because I can’t do the things I used to anymore." - really rings true for my dad, I think. He is a very active fellow whose primary hobby in caving (spelunking), and not being able to do that is really doing a number on his mental health.

@dcypherzzz

Oh, interesting! Thanks for sharing. I hadn't considered an allergic response... 🤔

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Replies to "@SusanEllen66 My father lives in France, which is where we're pursuing this; and unfortunately yes, referrals..."

@everwing
France, oh when you mentioned referrals I was hoping he was in the US where most people don’t need them
I have a friend in the Netherlands who is going through the same issues with referrals. Her GP is not very helpful and won’t give her a referral. She is in pain and needs help but…

I’m blessed to have a few specialists around me who are taking good care of me generally.
My next step is back to the neurologist who will hopefully test me again for possible dementia.

Blessings on you and your dad. 🌻