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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
"But I can't seem to find anyone that understands neuropathy … "
I sympathize! Not a day goes by I don't feel a twinge of frustration with my friends who may try but can't seem to fully understand what I'm dealing with. Because my PN is largely invisible (except to me!), my friends are disappointed when I don't show instant enthusiasm for activities I once relished without reservation. I'm acutely aware of the toll PN has taken on my life. I thought of this only last evening when I excused myself from the dinner table (as you might guess: a "call of nature"); had any of my friends noticed me as I exited the room, chances are they would not have noticed anything amiss; what they wouldn't have seen was the tentative, furrowed-brow extra-care I was taking just so I wouldn't lose my balance and go Splat! on the dining room floor.
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I know exactly how you and I think most of us feel with neuropathy! I was an outgoing person, enjoying getting out and visiting with others, until this happened to me almost four years ago. I am forced to use a walker now and I am unable to stand alone, so a cane is out! I prefer to remain in my home now where I feel safe and can avoid any embarrassing situations. My hair, too, has thinned and there are days I feel like an old woman. I am far from the person I used to be. My good friends now are those who understand this illness and accept me for who I am now. I know I will never be back to the way I was a few years ago and realizing this, I think, is half the battle. We have to make the best of what life throws at us. What else can we do?