1. < Breast Cancer

Does Mayo Clinic have oncologists who specialize in Lobular BC?

Posted by ilc67 @ilc67, Sep 28, 2023

My search continues. The doctors I have found so far who really get ILC (few and far between) are out of state. Now 56, 5 1/2 years after Bilateral mastectomy, never had a scan, was on Tamoxifen followed by Letrozole for less than a year. I could not tolerate side effects.
I moved this year and cannot find a new oncologist who knows lobular. I do not want to go to someone who doesn't understand how different it from ductal in imaging. long term treatment. I have a strong family history, (aunt died, g-ma DMX in 40's) I have searched MC's website but cannot find an ILC specialist in Jacksonville.
I would greatly appreciate and help.
Prayers to you all going through this as well.

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erthling | @erthling | Oct 2, 2023

Let me know what you find.

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ilc67 | @ilc67 | Oct 2, 2023

Hello, I have been getting a lot of helpful information on an invasive lobular Facebook site. Haven't been able to find anybody in Florida who specializes in lobular. I'm pretty certain of my plan, I will be going to the Houston area for someone who has impressed me 1,000% Dr Jason Mouabbi. I have to do some traveling for the initial appointment at least but I will for the first time feel confident in my doctor.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 5, 2023
In reply to @ilc67 "Hello, I have been getting a lot of helpful information on an invasive lobular Facebook site...." + (show)
@ilc67

Hello, I have been getting a lot of helpful information on an invasive lobular Facebook site. Haven't been able to find anybody in Florida who specializes in lobular. I'm pretty certain of my plan, I will be going to the Houston area for someone who has impressed me 1,000% Dr Jason Mouabbi. I have to do some traveling for the initial appointment at least but I will for the first time feel confident in my doctor.

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Have you submitted your request to Mayo Clinic in Jacksonville? You can submit a request to find out more here: http://mayocl.in/1mtmR63

At Mayo Clinic, you have the advantage of a team of experts in lobular breast cancer not just a single physician.

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1 reply
ilc67 | @ilc67 | Oct 6, 2023
In reply to @colleenyoung "Have you submitted your request to Mayo Clinic in Jacksonville? You can submit a request to..." + (show)
@colleenyoung

Have you submitted your request to Mayo Clinic in Jacksonville? You can submit a request to find out more here: http://mayocl.in/1mtmR63

At Mayo Clinic, you have the advantage of a team of experts in lobular breast cancer not just a single physician.

Jump to this post

Couldn't find ILC specialist there. Do you know if one?

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hollyng | @hollyng | Oct 10, 2023

Hello: I recently went to Mayo for Invasive Lubular Carcinoma. I had surgery on 9/22. I was told that they see a lot of ILC patients. I am happy with Mayo.

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2 replies
ilc67 | @ilc67 | Oct 10, 2023
In reply to @hollyng "Hello: I recently went to Mayo for Invasive Lubular Carcinoma. I had surgery on 9/22. I..." + (show)
@hollyng

Hello: I recently went to Mayo for Invasive Lubular Carcinoma. I had surgery on 9/22. I was told that they see a lot of ILC patients. I am happy with Mayo.

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That's great, can I ask who your oncologist is?

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1 reply
ilc67 | @ilc67 | Oct 10, 2023
In reply to @hollyng "Hello: I recently went to Mayo for Invasive Lubular Carcinoma. I had surgery on 9/22. I..." + (show)
@hollyng

Hello: I recently went to Mayo for Invasive Lubular Carcinoma. I had surgery on 9/22. I was told that they see a lot of ILC patients. I am happy with Mayo.

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https://www.mayoclinic.org/diseases-conditions/invasive-lobular-carcinoma/doctors-departments/ddc-20373980
On the page that lists lobular doctors...they are all in Rochester, MN. Wish they had some in Florida.

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barbaradh | @barbaradh | Oct 14, 2023

no idea that Cleveland Clinic has a presence in Florida. Thank you. Will research. Are you a pt there, Ingegard?

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hollyng | @hollyng | Oct 14, 2023
In reply to @ilc67 "That's great, can I ask who your oncologist is?" + (show)
@ilc67

That's great, can I ask who your oncologist is?

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My surgeon was Sarah McLaughlin. Please look her up on Mayo Fl website.I believe she’s the chief of staff there as well.

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1 reply
hollyng | @hollyng | Oct 14, 2023
In reply to @hollyng "My surgeon was Sarah McLaughlin. Please look her up on Mayo Fl website.I believe she’s the..." + (show)
@hollyng

My surgeon was Sarah McLaughlin. Please look her up on Mayo Fl website.I believe she’s the chief of staff there as well.

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The oncologist is Kostandinos Sideras.

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