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What's your experience with Orgovyx (relugolix)?

Prostate Cancer | Last Active: May 16 10:19am | Replies (135)

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@seasuite

Indeed, I started on that webpage and have talked with multiple folks at Orgovyx. It's unclear of the income data that they looked at. However, the appeals person told me that my SS income alone was over the limit. I did not 'retire' until 70, which is the maximum amount of benefit, however, it still seems ridiculous that would be 'too much income'.

Thanks for your concern. Thankfully, at this point, I'm only required to take O four months, although they said initially 4-6 months.

I hope you are doing well with the drug! I've never taken any drugs for a sustained period before and, thank God, the side effects have been mild so far. I'm working out twice as much daily and changed to a healthier diet.

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Replies to "Indeed, I started on that webpage and have talked with multiple folks at Orgovyx. It's unclear..."

I have been taking Orgovyx since June 2021. Stage 3, prostate cancer. Tumor is present, cannot seem to remove the cancer. Taking the Orgovyx has dropped PSA to undetectable. Started with prostate removal, cancer started back within 6 months, drug therapy and 8 weeks of radiation, 5 days a week. PSA started a slow rise, 6 years later started the Orgovyx. No side effects. Went to a Reel Recovery program a couple years ago. Great experience, would go again and recommend the experience, even if you do not fish. I have had heart issues that have been addressed, electrocadioinversion, cryroablation, and stents. Going strong at 73. For now I am undectable on my PSA. Hopefully, my insurance continues to cover the costs.