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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: May 29 7:12pm | Replies (422)

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@artemis1886

I have the same thing small fiber neuropathy (autonomic neuropathy) and severe axonal sensorimotor polyneuropathy.
There is a great research neurologist out of the University of Boston that accepts patients. Dr. Anna Louise Outlander. She has done studies on this.Google her and her lectures are on you tube. She did two control groups. If you ever took anatomy and physiology in college you are taught nerves do not regenerate.
They just die no hope of regenerating. I have spoken to my doctors about this. Including my pain management doctor there is more and more research in thc and nerve regeneration.
Back to her study. She used over 3,000 people in both studies. One group had IVIG therapy with prednisone for over six months slowed the progression but not the nerve pain. Group two did medical marijuana. THC has been shown to provide nerve regeneration not sure how the process works (the mechanism of how the thc is currently being studied in nerve regeneration) but it was proven to help with pain and people had better sleep. It takes more than one dose of the IVIG to work. They are supposed to use the prednisone with it but not all neurologists follow that protocol. I took it as a child IVIG therapy. It helped build up my immune system as a child. I have asthma and ended up in the hospital several times every winter with pneumonia. IVIG really made a difference in my life. I live in Texas and 1% thc is a joke it is not strong enough and charge you a 100.00 a bottle. They prescribed over 500.00 dollars which isn’t covered by insurance. To me that’s highway robbery when you can get it in Oklahoma a lot cheaper. I do not know your age but I am over 60. My friends used to buy Acapulco gold 1 ounce for 100.00. Texas is crazy. No I never did it illegally growing up. I have tried it twice in Colorado got the best nights sleep in forever. Did not have the nerve pain. I actually ate the next morning instead of being in pain just pushing my food around. I do not eat when my pain gets too bad.

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Replies to "I have the same thing small fiber neuropathy (autonomic neuropathy) and severe axonal sensorimotor polyneuropathy. There..."

Thanks for your detailed reply. You've done wayyyy more research than I. I'm just too worn out to dig deeply. The whole thing gets demoralizing although, generally, I'm an upbeat person. I go to a one hour exercise class 5 days a week. That has been the most substantial thing that addresses my cramps. Gabapentin also helps with sleep, 800 before bed. Keep me posted on ahay else you've tried and how you're doing.