Sensory-motor PN and feeling "chilly"?

I have chills even in a hot shower! I don't have a diagnosis of PM but have parethesias/neuropathy on my record.

It's unfortunate that hot showers don't help. I'm able to tame my chilliness with either a hot beverage or a little light exercise; or better still: both. I'm able to combat my chilliness (besides grabbing that nearby sweater) if I can find a quick way to raise my body's core temperature.

I have tingly feeling in the tips of my fingers only on my right hand. Is this normal?

Welcome @toughstuff, That's a hard question to answer. It may not be normal but I'm pretty sure others have similar symptoms and might be able to share their experience. Have you been diagnosed with a form of neuropathy? Do you have any other symptoms?

@ray666 Hi Ray.... As time moves on, I have experienced weird symptoms of PN and for me, they change. I have sensory motor PN and a few years back, I recall having the chilly feeling at times but that has since calmed down. Now, almost opposite for me. In the past 2 years, especially during the warm months, I experience more than normal sweating on upper part of body, neck and forehead in areas where I don't have neuropathy. This mostly occurs under exertion. And, I have constant coolness in legs south of knees to toes where I have PN, has been that way for about 6 years. Those of us with sensory motor and other forms of PN can have same diagnosis and different symptoms. A real head scratcher!!

The only abnormal temperature sensations I tend to have vs my peers are in my hands and feet, and usually it’s more of the cold (numbing and painful) that bothers me. It happens naturally at times but external environment contributes a lot. I try to avoid being in cold outdoors for long, but I often can’t escape the extremely cold temperatures of air conditioning in offices, stores, and restaurants, and even with gloves I keep in all jacket & sweater pockets, I can get pretty miserable. In summer, you can see me leaving my doctors or dentist office and putting my hands on my hot black car for a couple of minutes to try to get feeling back. I wear thick socks 24/7 unless at pool or in shower.
Extreme heat isn’t a walk in the park for my extremities either. I know to avoid hot showers, saunas & jacuzzis, and sticking hands in hot soap water while dishes are soaking. I try to sit under umbrellas to help my blood from boiling since I don’t seem to sweat.
However, compared to how I was 7 years ago when this PN showed up, I’m living comfortably. No more do I have to sleep with gloves, and the duration of my extreme discomfort I can experience is much improved and more tolerable. That’s because of the Gabapentin I take. It took a couple of months to get the dosage where it was best for me, but it’s put me in a much easier place with the unusual temperature intolerance in my extremities due to PN.

I have small fiber neuropathy and severe axonal sensorimotor polyneuropathy and of course peripheral neuropathy. It’s due to the poor circulation the neuropathy causes. Plus I have hypothyroidism which does not help.
In Texas this year it got up to 115 (heat index was hotter) and I am wearing long sleeves being stared at.
I no longer own short sleeve tops. The other thing is I buy a size larger because I can’t stand things touching my arms due to the neuropathy and the nerve pain. After, all who is going to get cold when it’s that hot. The other thing last winter old navy had a cardigans sweater to buy. I bought two. I know sweaters wear out. It’s has been my favorite go to sweater light beige. I no longer care if it matches. . It has two pockets that help me since I walk with two crutches. (Balance my feet have atrophied-loss of muscle due to the neuropaths effect on muscle) I keep a sweater and something to cover my legs in my car at all times because I get so cold. I get upset when people take my sweater out of the car.
Like my husband that knows I have this problem and he takes it out. Restaurants Grocery stores and so forth I automatically put it on. Here’s my outlook it’s easier to wear it than constantly freeze. If you get too hot just take it off. I can live with cold just embarrassing when everyone’s hot and sweating but you. It’s a lot easier to deal with than the bladder loss from the autonomic neuropathy. Since, I can no longer tell when I have to go to the restroom I make myself try every hour. That way I just don’t urinate all over myself in public. The cold is annoying but not as much as the other problems it causes as the disease progresses. . I have noticed and experienced that the neurologist are not up front about the progression of neuropathy. I wear socks or compression knee highs hose to bed compression 20-30 higher can cut off blood flow to the feet. The compression knee highs I have discovered helps with the nerve pain at night doesn’t stop it but helps.

I have lost all feeling in my fingers. I am constantly cutting them and getting stitches because I no longer feel them.
My husband will not let me cook without him being around. He cuts things up for me. When it first started in my hands I had the nerve pain and tingling. Then your hands start cramping/ spasming up and becoming disfigured due to the nerve pain and spasms it now last sometimes for up to two hours as I wait for the muscle relaxer take affect. My husband massages my hand and pulls my fingers back straight. It hurts really bad my hands still hurt the next morning due to the severe spasming.

My sensations of chilliness have nothing to do with the temperature of where I am. It can happen on a hot summer day.

Hi, I have DADS-M a sensory motor neuropathy. I can no longer sense temperature very well. As a consequence I am cold from hips down, and the rest of me doesn’t know if I am hot or cold. Doesn’t sound so bad but it is. Especially at night I constantly wake either covered in sweat with heart racing or freezing cold to the bone and it takes a long time and usually a hot bath to get warm again.
This is what helps me:
Keeping house at about 69 F year round easier to adjust to one temperature.
Wear compression knee braces the soft not too tight kind with magnets which I find helps greatly with spasms.
Hot baths am and before bed.
Use a magnetic mattress pad, this increases circulation and helps, especially at night.
Wear cotton or natural fibres.
Put bamboo sheets on my bed that wick away moisture and help regulate temperature.
Put an electric mattress pad only on bottom of my bed so I can get warm if my legs and feet get so cold it’s like they are in a bucket of ice or really cold. And one blanket on top with throw blankets on top of that to easily take them off and on.

For spasms the magnetic mattress pad really helps. At first it may hurt as the spasms slowly unwind but in a few days my muscles spasms are not gone but much better.

For balance this from an excellent osteopath:
Stand strait no shoes, and imagine a thread, running down through your body to your feet like a skyhook so you are standing perfectly straight. Then slightly and slowly rock back-and-forth on your feet. You can do this as well with your eyes closed really. When you do this, you get a sense of where your balance is without actually feeling the floor. I have been able to walk a few steps in a controlled environment with my eyes closed using this technique. It helps with balance immensely. A lot of times our body is in the wrong position not balanced correctly. We can’t feel where we are in space, but we can use other senses to make up for this if we practice. I can move much better now after working with the Osteopath.
Hope this helps